TY - JOUR
T1 - The elephant in the record
T2 - On the multiplicity of data recording work
AU - Cabitza, Federico
AU - Locoro, Angela
AU - Alderighi, Camilla
AU - Rasoini, Raffaele
AU - Compagnone, Domenico
AU - Berjano, Pedro
PY - 2019/1/1
Y1 - 2019/1/1
N2 - This article focuses on the production side of clinical data work, or data recording work, and in particular, on its multiplicity in terms of data variability. We report the findings from two case studies aimed at assessing the multiplicity that can be observed when the same medical phenomenon is recorded by multiple competent experts, yet the recorded data enable the knowledgeable management of illness trajectories. Often framed in terms of the latent unreliability of medical data, and then treated as a problem to solve, we argue that practitioners in the health informatics field must gain a greater awareness of the natural variability of data inscribing work, assess it, and design solutions that allow actors on both sides of clinical data work, that is, the production and care, as well as the primary and secondary uses of data to aptly inform each other’s practices.
AB - This article focuses on the production side of clinical data work, or data recording work, and in particular, on its multiplicity in terms of data variability. We report the findings from two case studies aimed at assessing the multiplicity that can be observed when the same medical phenomenon is recorded by multiple competent experts, yet the recorded data enable the knowledgeable management of illness trajectories. Often framed in terms of the latent unreliability of medical data, and then treated as a problem to solve, we argue that practitioners in the health informatics field must gain a greater awareness of the natural variability of data inscribing work, assess it, and design solutions that allow actors on both sides of clinical data work, that is, the production and care, as well as the primary and secondary uses of data to aptly inform each other’s practices.
KW - data recording work
KW - data work
KW - inter-rater agreement
KW - inter-rater reliability
KW - observer variability
UR - http://www.scopus.com/inward/record.url?scp=85060590877&partnerID=8YFLogxK
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U2 - 10.1177/1460458218824705
DO - 10.1177/1460458218824705
M3 - Article
AN - SCOPUS:85060590877
SN - 1460-4582
JO - Health Informatics Journal
JF - Health Informatics Journal
ER -