Management of coeliac disease patients after the confirmation of diagnosis in Central Europe

Petra Riznik, Luigina De Leo, Jasmina Dolinsek, Judit Gyimesi, Martina Klemenak, Berthold Koletzko, Sibylle Koletzko, Tunde Koltai, Ilma Rita Korponay-Szabó, Tomaz Krencnik, Marina Milinovic, Tarcisio Not, Goran Palcevski, Daniele Sblattero, Katharina Julia Werkstetter, Jernej Dolinsek

Research output: Contribution to journalArticlepeer-review


BACKGROUND: Recently published paediatric guidelines for diagnosing coeliac disease do not include recommendations on the follow-up of coeliac disease patients.

GOAL: The aim of this study was to assess the management practices and experience of coeliac disease patients with their follow-up appointments in Central Europe.

STUDY: Gastroenterologists and coeliac disease patients in five Central European countries were asked to complete the web-based questionnaire focusing on coeliac disease management practices.

RESULTS: Answers from 147 gastroenterologists and 2041 coeliac disease patients were available for the analysis. More than half of the gastroenterologists (58.5%) schedule the first follow-up visit within 3 months after the diagnosis. At follow-up, tissue transglutaminase antibodies are checked in almost all patients (95.9%). Approximately two-thirds (60.7%) of gastroenterologists refer all of their patients to the dietitian at diagnosis. Similarly, 42.8% of coeliac disease patients reported that they had not been appointed to a dietitian. Almost one-third of coeliac disease patients (30.8%) reported that they had no follow-up appointments with gastroenterologist at all.

CONCLUSIONS: Follow-up of coeliac disease patients is suboptimal in Central Europe. Many patients are not followed regularly. A lot of patients are not referred to a dietitian. The recommendations on the optimal follow-up of coeliac disease patients are needed in order to improve patient care.

Original languageEnglish
JournalEuropean journal of gastroenterology & hepatology
VolumePublish Ahead of Print
Publication statusE-pub ahead of print - Jan 6 2021


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